The Island of Dementia

Ellen Sue Moses is a fierce advocate for all people living with dementia. A retired pharmacist, her journey began when she began showing symptoms of mild cognitive impairment in 2013; she was later diagnosed with vascular dementia. Today, she is a member of the Advisory Board of the Empowering Partnerships Network (EPN), a member of the Connecticut State Coalition on Alzheimer’s Disease and Related Dementias, an Advisory Board member of the international EMPOWER Dementia Network+, and has participated in research at Yale University amongst others, all the way from initiation of projects to their dissemination.

Mark Gould is a retired clinical psychologist. He and Ellen Sue live in Glastonbury, Connecticut. Together they participate in the Resilience Living programs and activities at LiveWell. They are active in the EPN, which is an organization of people interested in changing the dementia narrative by sharing their stories to reduce the stigma associated with living with dementia. Through EPN, Ellen Sue has spoken at national meetings in Washington, D.C., Boston, Philadelphia, and Maryland. In addition to their speaking engagements, they have also written about living well with dementia.